National Down Syndrome Society (NDSS) - established in 1979 to increase public awareness about Down
syndrome; to assist families in addressing the needs of children born with this genetic condition; and to sponsor and encourage scientific
research. NDSS maintains a toll-free number (1-800-221-4602) to its professionally staffed information and referral service available
to people nationwide. They provide general information about Down syndrome; referral to parent support groups as well as other local
and national resources; and information on many topics related to Down syndrome. A free information packet is available for new parents.
Down Syndrome Research Foundation (DSRF) - The Down Syndrome Research Foundation was formed in 1995 in response to the need,
expressed by parents and professionals, for detailed and research-based information for themselves and for the community at large.
National
Association for Down Syndrome (NADS) - a not-for-profit organization, was founded in Chicago in 1961 by parents of children with Down
syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down syndrome
The
ARC - the country's largest voluntary organization committed to the welfare of all children and adults with developmental disabilities
and their families.
Non Down Syndrome Links: